warning: self-pity section!
I continued to have constant pain in my back, and intermittent intense referred pain from my right testicle, all day Sunday, and most of Monday. Mobility actually not too bad in terms of bending forwards/backwards, but excruciatingly painful if I attempt any kind of twisting of sideways motion. As quite often happens if this kind of pain sets in, I got “bitten by the black dog” on Sunday afternoon, and have been in a state of serious depresso since then. The usual bursting into tears for no reason, total loss of appetite, and a mild headache with slightly migrainous visual problems.
Maximum use of TENS unit, but I’ve had to cut back on that because it’s reached the point of shifting muscle tenseness up to my shoulders… which makes the headache /eyes thing worse. I did manage a walk to PC World to pick up some blank DVD’s: thought the fresh air might do me good, and my mobility is actually OK, but it didn’t really help. Back via Tesco to pick up supper and catfood.
Nearly 2300h on Monday as I write this, and I’m really not feeling much better yet, despite max doses of co-codamol, regular mild use of TENS unit, and re-starting St John’s wort. Hope that a bath (and with a bit of luck going to sleep earlier than the six am that has been the case for the last two days) will mean I start off tomorrow a bit better: I’ve got to be in Hammersmith for 1015 for a TENS review. The thought of an hour on the tube in my present condition is actually almost unbearable.
This is what I SO FUCKING HATE about my disability. I can cope with having limited mobility, think I’ve adjusted pretty OK to feeling that in some ways I’m old before my time… have a reasonable grip on the frustrations of having to get others to do things (DIY etc) that in some sense I still feel I “ought” to be able to do for myself, and accepting that there will just be days when i can’t hoover, or empty the dishwasher / washing machine, or whatever. But when I have more than a few hours of unremitting intense pain and the weather is damp enough for it not to be localised to my lower back, the black dog bites.
To be reduced to bursting into tears for no reason, to feel totally yucky, emotionally fragile, and physically in pain (even if mobility is not particularly poor) is the pits. I know it will pass in two or three days. I know the frequency with which it happens is a LOT less than it was (down to about once every five or six weeks or less on average, from about once a fortnight ). And I certainly generally don’t feel that life is not worth living – there has been so much positive in my life this year. But Oh God it is so hard to deal with sometimes … all I can do is curl up and whimper and wait for it to go away!
Positive learning outcome: DO NOT STAY ON ANY BUS, TRAIN, ETC that I can feel doing me damage. It is SO not worth it, for almost any reason. So I guess I’m gonna have to get up especially early tomorrow, so that I have plenty of time to catch Silverlink to Gunnersbury then district line back to Hammersmith … and to pass up the odd train if it starts bouncing around for any reason.